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Month: November 2024

2024 Living Well with ALS Educational Symposium

November 25, 2024 Comments Off on 2024 Living Well with ALS Educational Symposium

Resources for Persons Living with ALS and Their Caregivers Thank you to everyone who was able to join us at ALS United Illinois’s 11th Annual ALS Educational Symposium and Vendor…

Creating Memories & Being in the Moment

November 14, 2024 Comments Off on Creating Memories & Being in the Moment

Brianna Neal, MSW, LSW, Care Services Coordinator – Social Worker, ALS United Illinois There are many things that we experience in life that can make us stray away from what…

An Unforgettable Charleston Adventure

November 14, 2024 Comments Off on An Unforgettable Charleston Adventure

Flossmoor resident Cynequa Smith recently embarked on an unforgettable journey to Charleston, South Carolina, thanks to the Team Gleason Adventure Program. My Team Gleason Adventure to Charleston was amazing. I…

Navigating Fall and Holiday Travels with ALS: Tips and Considerations

November 14, 2024 Comments Off on Navigating Fall and Holiday Travels with ALS: Tips and Considerations

Joumana Fawaz-Baroody, RN, BSN, Vice President of Care Services, ALS United Illinois Navigating Fall and Holiday Travels with ALS: Tips and Considerations Traveling during the fall and holiday seasons can…

The Role of Hydration in Managing ALS

November 14, 2024 Comments Off on The Role of Hydration in Managing ALS

Gema Ramos, RN, Care Services Coordinator, ALS United Illinois Staying hydrated and taking in an adequate amount of fluids is very important for an individual with ALS. Liquids help with…

Adapting Your Way Through ALS

November 13, 2024 Comments Off on Adapting Your Way Through ALS

Aimee Mattes, OTR/L, CLT-LANA ALS symptoms can present challenges to performing day-to-day tasks. While each person’s journey is different, many will experience some combination of weakness in the upper body,…

ALS United Illinois Equipment Lending Program

November 13, 2024 Comments Off on ALS United Illinois Equipment Lending Program

Peggy Merriman, RN, BSN, Director of Care Services, ALS United Illinois One of the most active and often-accessed programs offered by ALS United Illinois is the Equipment Lending Program. This…

Introducing Dr. Carlos Lara

November 13, 2024 Comments Off on Introducing Dr. Carlos Lara

Joumana Fawaz-Baroody, RN, BSN, Vice President of Care Service, ALS United Illinois Dr. Carlos Lara is an Assistant Professor of Neurology at the University of Chicago and a board-certified neurologist…

Website for Alternative and Off-Label Treatments

November 13, 2024 Comments Off on Website for Alternative and Off-Label Treatments

Gema Ramos, RN, Care Services Coordinator, ALS United Illinois Did you see a new medication on the internet? Did you hear about a treatment for ALS on a social media…

The Importance of Participating in ALS Clinical Research Trials

November 13, 2024 Comments Off on The Importance of Participating in ALS Clinical Research Trials

Joumana Fawaz-Baroody, RN, BSN, Vice President of Care Services, ALS United Illinois Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and spinal…