Navigating Ventilation Decisions in ALS

Decisions about ventilation are among the most complex and personal choices people living with ALS and their families may face. This Living Well with ALS webinar recorded February 10, 2026 was designed to provide real-world insight, medical context, and compassionate guidance to help individuals feel informed and supported, whatever path they choose. Missed the discussion or want to watch it again? You can now view the full recording anytime.

During the session, guest speaker Anne O’Sullivan, RRT, RCP, shared practical clinical insight drawn from more than 25 years of experience supporting individuals and families through complex care decisions.

We also heard from Charlie Wren, who has lived with a tracheostomy and invasive ventilation for eight years, as he shared what day-to-day life with ventilation looks like from a personal perspective.

Watch and share content from our past Living Well with ALS webinars here: https://alsunitedillinois.org/navigating-als/videos-webinars.

For questions about the program, contact Joumana Baroody at joumana@alsunitedchicago.org.